FULFILLED AND REMAINING UNMET NEEDS FOR RARE DISEASES: THE FUTURE OF ICORD
20-21 September 2018
Arranged by ICORD (International Conferences on Rare Diseases and Orphan Drugs) in collaboration with the Karolinska University Hospital and Karolinska Institutet
FULFILLED AND UNMET NEEDS OF RARE DISEASES
ICORD is an International Society for all individuals active in rare diseases and/or orphan drugs, including health care, research, academic, industry, patients, patient groups, regulatory authorities, health authorities, and public policy professionals. During recent decades, the awareness on problems associated with Rare Diseases has increased markedly. Moreover, the international collaboration on Rare Diseases has improved. However, there are still many unmet needs for patients with Rare Diseases, not least in developing countries.
One aim of ICORD 2018 was to review needs that have been fulfilled and, in particular, to highlight important remaining unmet needs for patients with Rare Diseases in a global perspective.
THE FUTURE OF ICORD
During the last 15 years, 2004-2018, the Karolinska University Hospital and the Karolinska Institute have hosted the ICORD secretariat. Based on remaining important unmet needs for patients with Rare Diseases, and how ICORD can serve to meet these needs, alternative future scenarios for ICORD location and directions were discussed.
The BioClinicum Research Building, Solnavägen 30, Solna (Stockholm) Google maps
Karolinska University Hospital Solna/Karolinska Institutet, Sweden.
In contrast to previous years, no free abstract presentations, nor poster sessions were part of this meeting.
ICORD MEMBERS MEETING
The ICORD General Assembly (for ICORD members only) took place on the 21st of September, 2018 at 10.30-12.30 at Karolinska Institutet.
Manuel Posada, Ann Nordgren, Steve Groft, Jan-Inge Henter, Désirée Gavhed, Emilio Roldàn, Yukiko Nishimura
LOCAL ORGANIZING COMMITTEE
Ann Nordgren, Désirée Gavhed, Jan-Inge Henter, Ida Hed Myrberg, Elisabet Bergsten