RDI Collaboration

ICORD welcomes the establishment of Rare Disease International (RDI), an EURORDIS initiative that unites RD patient groups from around the world.

In order to streamline efforts, ICORD and RDI will collaborate in the organisation of the future Annual ICORD Meetings. RDI will contribute in the development of the conference programmes and separate RDI patient workshops will be arranged. The aim of the partnership is to boost progress on rare disease policy worldwide and the first joint collaboration was the 11th annual ICORD meeting, 19-22 October 2016, in South Africa. The local partner for the event was Rare Disease South Africa, an umbrella organisation for RD patient groups.

Read the press release of the ICORD-RDI collaboration here.